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42 U.S.C. § 244b — Activities relating to cardiomyopathy
Federal law — U.S. Code and appendices · legal_authorities
**(a) Report on CDC national cardiomyopathy activities**
(1) **In general** — Not later than 18 months after December 23, 2024, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall submit to Congress a report on findings generated from existing activities conducted by the Centers for Disease Control and Prevention to improve the understanding of the prevalence and epidemiology of cardiomyopathy across the lifespan, from birth to adulthood, with particular interest in the following:
(A) The natural history of individuals with cardiomyopathy, in both the pediatric and adult population.
(B) Estimates of cardiomyopathy-related emergency department visits and hospitalizations, in both the pediatric and adult population.
(2) **Public access** — Subject to paragraph (3), the report submitted under this subsection shall be made available to the public.
(3) **Privacy protections** — The Secretary shall ensure that this subsection is carried out in a manner that complies with all applicable privacy laws under Federal and State law.
**(b) Improving risk assessments for individuals with cardiomyopathy**
(1) **In general** — The Secretary shall develop and make publicly available a cardiomyopathy risk assessment for health care providers and individuals. Such risk assessment shall, at a minimum, include the following:
(A) Background information on the prevalence, incidence, and health impact of cardiomyopathy, including all forms of cardiomyopathy and their effects on pediatric, adolescent, and adult individuals.
(B) A worksheet with variables and conditions for an individual or health care provider to use in assessing whether an individual is at risk for cardiomyopathy.
(C) A worksheet with variables and stages of p
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Source location: Title 42, Chapter 6A, § 244b; chapter-6a-public-health-service.md
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**(a) Report on CDC national cardiomyopathy activities**
(1) **In general** — Not later than 18 months after December 23, 2024, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall submit to Congress a report on findings generated from existing activities conducted by the Centers for Disease Control and Prevention to improve the understanding of the prevalence and epidemiology of cardiomyopathy across the lifespan, from birth to adulthood, with particular interest in the following:
(A) The natural history of individuals with cardiomyopathy, in both the pediatric and adult population.
(B) Estimates of cardiomyopathy-related emergency department visits and hospitalizations, in both the pediatric and adult population.
(2) **Public access** — Subject to paragraph (3), the report submitted under this subsection shall be made available to the public.
(3) **Privacy protections** — The Secretary shall ensure that this subsection is carried out in a manner that complies with all applicable privacy laws under Federal and State law.
**(b) Improving risk assessments for individuals with cardiomyopathy**
(1) **In general** — The Secretary shall develop and make publicly available a cardiomyopathy risk assessment for health care providers and individuals. Such risk assessment shall, at a minimum, include the following:
(A) Background information on the prevalence, incidence, and health impact of cardiomyopathy, including all forms of cardiomyopathy and their effects on pediatric, adolescent, and adult individuals.
(B) A worksheet with variables and conditions for an individual or health care provider to use in assessing whether an individual is at risk for cardiomyopathy.
(C) A worksheet with variables and stages of progression for an individual or health care provider to use in assessing whether and to what extent cardiomyopathy has progressed in an individual.
(D) Guidelines on cardiomyopathy screenings for individuals who are at risk for, or have a family history of, cardiomyopathy.
(2) **Stakeholder input** — In carrying out paragraph (1), the Director of the Centers for Disease Control and Prevention shall seek input from external stakeholders including—
(A) representatives from national patient advocacy organizations expert in all forms of cardiomyopathy;
(B) representatives from medical professional societies that specialize in the care of adults and pediatrics with cardiomyopathy; and
(C) representatives from other relevant Federal agencies.
**(c) Definition** In this section, the term “cardiomyopathy” has the meaning given to such term in [section 244a of this title](https://uscode.house.gov/view.xhtml?req=granuleid:USC-prelim-title42-section244a&num=0&edition=prelim).
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Federal law — U.S. Code and appendices · legal_authorities
**(a) Materials and resources** Not later than 18 months after December 23, 2024, the Secretary, in consultation with the Director of the Centers for Disease Control and Prevention, shall develop public education materials and resources to be disseminated to school administrators, educators, school health professionals, coaches, families, guardians, caregivers, and other appropriate individuals. The materials and resources shall include—
(1) information on the signs, symptoms, and risk factors associated with high-risk cardiac conditions and genetic heart rhythm abnormalities that may cause sudden cardiac arrest in children, adolescents, and young adults, including—
(A) cardiomyopathy;
(B) long QT syndrome, Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia, short QT syndrome, and Wolff-Parkinson-White syndrome; and
(C) other high-risk cardiac conditions, as determined by the Secretary;
(2) guidelines regarding the placement of automated external defibrillators in schools, early childhood education programs, and child care centers;
(3) training information on automated external defibrillators and cardiopulmonary resuscitation; and
(4) recommendations for how schools, early childhood education programs, and child care centers can develop and implement a cardiac emergency response plan.
**(b) Dissemination of materials and resources** Not later than 30 months after December 23, 2024, the Secretary shall disseminate the materials and resources developed under subsection (a) in accordance with the following:
(1) **Distribution by State educational agencies** — The Secretary shall make available such materials and resources to State educational agencies to distribute—
(A) to school administrators, educators, school health professionals,
Source: Supplied U.S. Code snapshot — release unconfirmed · 42 U.S.C. § 244a
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Federal law — U.S. Code and appendices · legal_authorities
Page 169
TITLE 42—THE PUBLIC HEALTH AND WELFARE
§ 244b
(3) training information on automated exter-
nal defibrillators and cardiopulmonary resus-
citation; and
(4) recommendations for how schools, early
childhood education programs, and child care
centers can develop and implement a cardiac
emergency response plan.
(b) Dissemination of materials and resources
Not later than 30 months after December 23,
2024, the Secretary shall disseminate the mate-
rials and resources developed under subsection
(a) in accordance with the following:
(1) Distribution by State educational agencies
The Secretary shall make available such
materials and resources to State educational
agencies to distribute—
(A) to school administrators, educators,
school health professionals, coaches, fami-
lies, guardians, caregivers, and other appro-
priate individuals, the information devel-
oped under subsection (a)(1);
(B) to parents, guardians, or other care-
givers, the cardiomyopathy risk assessment
developed pursuant to section 244b(b)(1) of
this title; and
(C) to school administrators, educators,
school health professionals, and coaches—
(i) the guidelines described in subsection
(a)(2);
(ii) the training information described in
subsection (a)(3); and
(iii) the recommendations described in
subsection (a)(4).
(2) Dissemination to health departments and
professionals
The Secretary shall make available the ma-
terials and resources developed under sub-
section (a) to State and local health depart-
ments, pediatricians, hospitals, and other
health professionals, such as nurses and first
responders.
(3) Posting on website
(A) CDC
(i) In general
The Secretary, through the Director,
shall post the materials and resources de-
veloped under subsection (a) on the public
In
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