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42 U.S.C. § 1396u — Community supported living arrange-
Federal law — U.S. Code and appendices · legal_authorities
Page 4363
TITLE 42—THE PUBLIC HEALTH AND WELFARE
§ 1396u
1 So in original. The comma probably should precede ‘‘the
term’’.
election period under paragraph (2) to reason-
able classifications (based on age, degree of
functional disability, and need for services).
(4) Allocation of medical assistance
The Secretary shall establish a limitation
on the amount of Federal medical assistance
available to any State during the State’s elec-
tion period under paragraph (2). The limita-
tion under this paragraph shall take into ac-
count the limitation under paragraph (1) and
the number of elderly individuals age 65 or
over residing in such State in relation to the
number of such elderly individuals in the
United States during 1990. For purposes of the
previous sentence, elderly individuals shall, to
the maximum extent practicable, be low-in-
come elderly individuals.
(Aug. 14, 1935, ch. 531, title XIX, § 1929, as added
Pub. L. 101–508, title IV, § 4711(b), Nov. 5, 1990, 104
Stat. 1388–174; amended Pub. L. 106–113, div. B,
§ 1000(a)(6) [title VI, § 608(v)], Nov. 29, 1999, 113
Stat. 1536, 1501A–398.)
Editorial Notes
CODIFICATION
Pub. L. 101–508, title IV, § 4711(b)(1), Nov. 5, 1990, 104
Stat. 1388–174, which directed renumbering of section
1929 of the Social Security Act, act Aug. 14, 1935, as sec-
tion 1930, could not be executed because there was no
section 1929.
AMENDMENTS
1999—Subsec.
(c)(2)(E)(i),
(ii).
Pub.
L.
106–113,
§ 1000(a)(6) [title VI, § 608(v)(1)], realigned margins.
Subsec. (k)(1)(A)(i). Pub. L. 106–113, § 1000(a)(6) [title
VI, § 608(v)(2)], substituted ‘‘large community care set-
tings),’’ for ‘‘large community care settings,’’.
Subsec. (l). Pub. L. 106–113, § 1000(a)(6) [title VI,
§ 608(v)(3)], substituted ‘‘Statewideness’’ for ‘‘
Source: Supplied 2024 U.S. Code historical extraction · 42 U.S.C. § 1396u
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Page 4363
TITLE 42—THE PUBLIC HEALTH AND WELFARE
§ 1396u
1 So in original. The comma probably should precede ‘‘the
term’’.
election period under paragraph (2) to reason-
able classifications (based on age, degree of
functional disability, and need for services).
(4) Allocation of medical assistance
The Secretary shall establish a limitation
on the amount of Federal medical assistance
available to any State during the State’s elec-
tion period under paragraph (2). The limita-
tion under this paragraph shall take into ac-
count the limitation under paragraph (1) and
the number of elderly individuals age 65 or
over residing in such State in relation to the
number of such elderly individuals in the
United States during 1990. For purposes of the
previous sentence, elderly individuals shall, to
the maximum extent practicable, be low-in-
come elderly individuals.
(Aug. 14, 1935, ch. 531, title XIX, § 1929, as added
Pub. L. 101–508, title IV, § 4711(b), Nov. 5, 1990, 104
Stat. 1388–174; amended Pub. L. 106–113, div. B,
§ 1000(a)(6) [title VI, § 608(v)], Nov. 29, 1999, 113
Stat. 1536, 1501A–398.)
Editorial Notes
CODIFICATION
Pub. L. 101–508, title IV, § 4711(b)(1), Nov. 5, 1990, 104
Stat. 1388–174, which directed renumbering of section
1929 of the Social Security Act, act Aug. 14, 1935, as sec-
tion 1930, could not be executed because there was no
section 1929.
AMENDMENTS
1999—Subsec.
(c)(2)(E)(i),
(ii).
Pub.
L.
106–113,
§ 1000(a)(6) [title VI, § 608(v)(1)], realigned margins.
Subsec. (k)(1)(A)(i). Pub. L. 106–113, § 1000(a)(6) [title
VI, § 608(v)(2)], substituted ‘‘large community care set-
tings),’’ for ‘‘large community care settings,’’.
Subsec. (l). Pub. L. 106–113, § 1000(a)(6) [title VI,
§ 608(v)(3)], substituted ‘‘Statewideness’’ for ‘‘State
wideness’’.
Statutory Notes and Related Subsidiaries
EFFECTIVE DATE
Section applicable to home and community care fur-
nished on or after July 1, 1991, without regard to wheth-
er or not final regulations to carry out the amend-
ments made by section 4711 of Pub. L. 101–508 have been
promulgated by such date, see section 4711(e) of Pub. L.
101–508, set out as an Effective Date of 1990 Amendment
note under section 1396a of this title.
§ 1396u. Community supported living arrange-
ments services
(a) Community supported living arrangements
services
In this subchapter, the term ‘‘community sup-
ported living arrangements services’’ means one
or more of the following services meeting the re-
quirements of subsection (h) provided in a State
eligible to provide services under this section (as
defined in subsection (d)) to assist a develop-
mentally disabled individual (as defined in sub-
section (b)) in activities of daily living nec-
essary to permit such individual to live in the
individual’s own home, apartment, family home,
or rental unit furnished in a community sup-
ported living arrangement setting:
(1) Personal assistance.
(2) Training and habilitation services (nec-
essary to assist the individual in achieving in-
creased integration, independence and produc-
tivity).
(3) 24-hour emergency assistance (as defined
by the Secretary).
(4) Assistive technology.
(5) Adaptive equipment.
(6) Other services (as approved by the Sec-
retary, except those services described in sub-
section (g)).
(7) Support services necessary to aid an indi-
vidual to participate in community activities.
(b) ‘‘Developmentally disabled individual’’ de-
fined
In
this
subchapter
the
term,1
‘‘develop-
mentally disabled individual’’ means an indi-
vidual who as defined by the Secretary is de-
scribed within the term ‘‘mental retardation
and related conditions’’ as defined in regulations
as in effect on July 1, 1990, and who is residing
with the individual’s family or legal guardian in
such individual’s own home in which no more
than 3 other recipients of services under this
section are residing and without regard to
whether or not such individual is at risk of in-
stitutionalization (as defined by the Secretary).
(c) Criteria for selection of participating States
The Secretary shall develop criteria to review
the applications of States submitted under this
section to provide community supported living
arrangement services. The Secretary shall pro-
vide in such criteria that during the first 5 years
of the provision of services under this section
that no less than 2 and no more than 8 States
shall be allowed to receive Federal financial par-
ticipation for providing the services described in
this section.
(d) Quality assurance
A State selected by the Secretary to provide
services under this section shall in order to con-
tinue to receive Federal financial participation
for providing services under this section be re-
quired to establish and maintain a quality as-
surance program, that provides that—
(1) the State will certify and survey pro-
viders of services under this section (such sur-
veys to be unannounced and average at least 1
a year);
(2) the State will adopt standards for survey
and certification that include—
(A) minimum qualifications and training
requirements for provider staff;
(B) financial operating standards; and
(C) a consumer grievance process;
(3) the State will provide a system that al-
lows for monitoring boards consisting of pro-
viders, family members, consumers, and neigh-
bors;
(4) the State will establish reporting proce-
dures to make available information to the
public;
(5) the State will provide ongoing moni-
toring of the health and well-being of each re-
cipient;
(6) the State will provide the services de-
fined in subsection (a) in accordance with an
individual support plan (as defined by the Sec-
retary in regulations); and
Page 4364
TITLE 42—THE PUBLIC HEALTH AND WELFARE
§ 1396u
(7) the State plan amendment under this sec-
tion shall be reviewed by the State Council on
Developmental Disabilities established under
section 125 of the Developmental Disabilities
Assistance and Bill of Rights Act of 2000 [42
U.S.C. § 15025] and the protection and advocacy
system established under subtitle C of that
Act [42 U.S.C. 15041 et seq.].
The Secretary shall not approve a quality assur-
ance plan under this subsection and allow a
State to continue to receive Federal financial
participation under this section unless the State
provides for public hearings on the plan prior to
adoption and implementation of its plan under
this subsection.
(e) Maintenance of effort
States selected by the Secretary to receive
Federal financial participation to provide serv-
ices under this section shall maintain current
levels of spending for such services in order to
be eligible to continue to receive Federal finan-
cial participation for the provision of such serv-
ices under this section.
(f) Excluded services
No Federal financial participation shall be al-
lowed for the provision of the following services
under this section:
(1) Room and board.
(2) Cost of prevocational, vocational and
supported employment.
(g) Waiver of requirements
The Secretary may waive such provisions of
this subchapter as necessary to carry out the
provisions of this section including the fol-
lowing requirements of this subchapter—
(1) comparability of amount, duration, and
scope of services; and
(2) statewideness.
(h) Minimum protections
(1) Publication of interim and final require-
ments
(A) In general
The Secretary shall publish, by July 1,
1991, a regulation (that shall be effective on
an interim basis pending the promulgation
of final regulations), and by October 1, 1992,
a final regulation, that sets forth interim
and final requirements, respectively, con-
sistent with subparagraph (B), to protect the
health, safety, and welfare of individuals re-
ceiving community supported living ar-
rangements services.
(B) Minimum protections
Interim and final requirements under sub-
paragraph (A) shall assure, through methods
other than reliance on State licensure proc-
esses or the State quality assurance pro-
grams under subsection (d), that—
(i) individuals receiving community sup-
ported living arrangements services are
protected from neglect, physical and sex-
ual abuse, and financial exploitation;
(ii) a provider of community supported
living arrangements services may not use
individuals who have been convicted of
child or client abuse, neglect, or mistreat-
ment or of a felony involving physical
harm to an individual and shall take all
reasonable steps to determine whether ap-
plicants for employment by the provider
have histories indicating involvement in
child or client abuse, neglect, or mistreat-
ment or a criminal record involving phys-
ical harm to an individual;
(iii) individuals or entities delivering
such services are not unjustly enriched as
a result of abusive financial arrangements
(such as owner lease-backs); and
(iv) individuals or entities delivering
such services to clients, or relatives of
such individuals, are prohibited from being
named beneficiaries of life insurance poli-
cies purchased by (or on behalf of) such cli-
ents.
(2) Specified remedies
If the Secretary finds that a provider has not
met an applicable requirement under sub-
section (h), the Secretary shall impose a civil
money penalty in an amount not to exceed
$10,000 for each day of noncompliance. The
provisions of section 1320a–7a of this title
(other than subsections (a) and (b)) shall apply
to a civil money penalty under the previous
sentence in the same manner as such provi-
sions apply to a penalty or proceeding under
section 1320a–7a(a) of this title.
(i) Treatment of funds
Any funds expended under this section for
medical assistance shall be in addition to funds
expended for any existing services covered under
the State plan, including any waiver services for
which an individual receiving services under
this program is already eligible.
(j) Limitation on amounts of expenditures as
medical assistance
The amount of funds that may be expended as
medical assistance to carry out the purposes of
this section shall be for fiscal year 1991,
$5,000,000, for fiscal year 1992, $10,000,000, for fis-
cal year 1993, $20,000,000, for fiscal year 1994,
$30,000,000, for fiscal year 1995, $35,000,000, and for
fiscal years thereafter such sums as provided by
Congress.
(Aug. 14, 1935, ch. 531, title XIX, § 1930, as added
Pub. L. 101–508, title IV, § 4712(b), Nov. 5, 1990, 104
Stat. 1388–187; amended Pub. L. 106–402, title IV,
§ 401(b)(6)(B), Oct. 30, 2000, 114 Stat. 1738.)
Editorial Notes
REFERENCES IN TEXT
The Developmental Disabilities Assistance and Bill of
Rights Act of 2000, referred to in subsec. (d)(7), is Pub.
L. 106–402, Oct. 30, 2000, 114 Stat. 1677. Subtitle C of the
Act probably means subtitle C of title I of the Act,
which is classified generally to part C (§ 15041 et seq.) of
subchapter I of chapter 144 of this title. For complete
classification of this Act to the Code, see Short Title
note set out under section 15001 of this title and Tables.
CODIFICATION
Pub. L. 101–508, title IV, § 4712(b)(1), Nov. 5, 1990, 104
Stat. 1388–187, which directed renumbering of section
1930 of the Social Security Act, act Aug. 14, 1935, as sec-
tion 1931, could not be executed because there was no
section 1930.
Page 4365
TITLE 42—THE PUBLIC HEALTH AND WELFARE
§ 1396u–1
AMENDMENTS
2000—Subsec. (d)(7). Pub. L. 106–402 substituted ‘‘State
Council on Developmental Disabilities established
under section 125 of the Developmental Disabilities As-
sistance and Bill of Rights Act of 2000 and the protec-
tion and advocacy system established under subtitle C
of that Act’’ for ‘‘State Planning Council established
under section 6024 of this title, and the Protection and
Advocacy System established under section 6042 of this
title’’.
Statutory Notes and Related Subsidiaries
EFFECTIVE DATE
Pub. L. 101–508, title IV, § 4712(c), Nov. 5, 1990, 104
Stat. 1388–190, provided that:
‘‘(1) IN GENERAL.—The amendments made by this sec-
tion [enacting this section and amending section 1396d
of this title] shall apply to community supported living
arrangements services furnished on or after the later of
July 1, 1991, or 30 days after the publication of regula-
tions setting forth interim requirements under sub-
section (h) [probably means 42 U.S.C. 1396u(h)] without
regard to whether or not final regulations to carry out
such amendments have been promulgated by such date.
‘‘(2) APPLICATION PROCESS.—The Secretary of Health
and Human Services shall provide that the applications
required to be submitted by States under this section
shall be received and approved prior to the effective
date specified in paragraph (1).’’
§ 1396u–1. Assuring coverage for certain low-in-
come families
(a) References to subchapter IV–A are references
to pre-welfare-reform provisions
Subject to the succeeding provisions of this
section, with respect to a State any reference in
this subchapter (or any other provision of law in
relation to the operation of this subchapter) to
a provision of part A of subchapter IV, or a
State plan under such part (or a provision of
such a plan), including income and resource
standards and income and resource methodolo-
gies under such part or plan, shall be considered
a reference to such a provision or plan as in ef-
fect as of July 16, 1996, with respect to the State.
(b) Application of pre-welfare-reform eligibility
criteria
(1) In general
For purposes of this subchapter, subject to
paragraphs (2) and (3), in determining eligi-
bility for medical assistance—
(A) an individual shall be treated as re-
ceiving aid or assistance under a State plan
approved under part A of subchapter IV only
if the individual meets—
(i) the income and resource standards for
determining eligibility under such plan,
and
(ii) the eligibility requirements of such
plan under subsections (a) through (c) of
section 606 of this title and section 607(a)
of this title,
as in effect as of July 16, 1996; and
(B) the income and resource methodologies
under such plan as of such date shall be used
in the determination of whether any indi-
vidual meets income and resource standards
under such plan.
(2) State option
For purposes of applying this section, a
State—
(A) may lower its income standards appli-
cable with respect to part A of subchapter
IV, but not below the income standards ap-
plicable under its State plan under such part
on May 1, 1988;
(B) may increase income or resource
standards under the State plan referred to in
paragraph (1) over a period (beginning after
July 16, 1996) by a percentage that does not
exceed the percentage increase in the Con-
sumer Price Index for all urban consumers
(all items; United States city average) over
such period; and
(C) may use income and resource meth-
odologies that are less restrictive than the
methodologies used under the State plan
under such part as of July 16, 1996.
(3) Option to terminate medical assistance for
failure to meet work requirement
(A) Individuals receiving cash assistance
under TANF
In the case of an individual who—
(i) is receiving cash assistance under a
State program funded under part A of sub-
chapter IV,
(ii) is eligible for medical assistance
under this subchapter on a basis not re-
lated to section 1396a(l) of this title, and
(iii) has the cash assistance under such
program terminated pursuant to section
607(e)(1)(B) of this title (as in effect on or
after the welfare reform effective date) be-
cause of refusing to work,
the State may terminate such individual’s
eligibility for medical assistance under this
subchapter until such time as there no
longer is a basis for the termination of such
cash assistance because of such refusal.
(B) Exception for children
Subparagraph (A) shall not be construed as
permitting a State to terminate medical as-
sistance for a minor child who is not the
head of a household receiving assistance
under a State program funded under part A
of subchapter IV.
(c) Treatment for purposes of transitional cov-
erage provisions
(1) Transition in the case of child support col-
lections
The provisions of section 606(h) of this title
(as in effect on July 16, 1996) shall apply, in re-
lation to this subchapter, with respect to indi-
viduals (and families composed of individuals)
who are described in subsection (b)(1)(A), in
the same manner as they applied before such
date with respect to individuals who became
ineligible for aid to families with dependent
children as a result (wholly or partly) of the
collection of child or spousal support under
part D of subchapter IV.
(2) Transition in the case of earnings from em-
ployment
For continued medical assistance in the case
of individuals (and families composed of indi-
viduals) described in subsection (b)(1)(A) who
would otherwise become ineligible because of
hours or income from employment, see sec-
tions 1396r–6 and 1396a(e)(1) of this title.
Cross-references
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Federal law — U.S. Code and appendices · legal_authorities
**(a) Community supported living arrangements services** In this subchapter, the term “community supported living arrangements services” means one or more of the following services meeting the requirements of subsection (h) provided in a State eligible to provide services under this section (as defined in subsection (d)) to assist a developmentally disabled individual (as defined in subsection (b)) in activities of daily living necessary to permit such individual to live in the individual’s own home, apartment, family home, or rental unit furnished in a community supported living arrangement setting:
(1) Personal assistance.
(2) Training and habilitation services (necessary to assist the individual in achieving increased integration, independence and productivity).
(3) 24-hour emergency assistance (as defined by the Secretary).
(4) Assistive technology.
(5) Adaptive equipment.
(6) Other services (as approved by the Secretary, except those services described in subsection (g)).
(7) Support services necessary to aid an individual to participate in community activities.
**(b) “Developmentally disabled individual” defined** In this subchapter the term,11 So in original. The comma probably should precede “the term”. “developmentally disabled individual” means an individual who as defined by the Secretary is described within the term “mental retardation and related conditions” as defined in regulations as in effect on July 1, 1990, and who is residing with the individual’s family or legal guardian in such individual’s own home in which no more than 3 other recipients of services under this section are residing and without regard to whether or not such individual is at risk of institutionalization (as defined by the Secretary).
**(c) Criteria for selection of particip
Source: Supplied U.S. Code snapshot — release unconfirmed · 42 U.S.C. § 1396u
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Federal law — U.S. Code and appendices · legal_authorities
**(a) In general** Each State that receives assistance under this part shall establish and maintain a Council to undertake advocacy, capacity building, and systemic change activities (consistent with subsections (b) and (c) of [section 15001 of this title](https://uscode.house.gov/view.xhtml?req=granuleid:USC-prelim-title42-section15001&num=0&edition=prelim)) that contribute to a coordinated, consumer- and family-centered, consumer- and family-directed, comprehensive system of community services, individualized supports, and other forms of assistance that contribute to the achievement of the purpose of this part. The Council shall have the authority to fulfill the responsibilities described in subsection (c).
**(b) Council membership**
(1) **Council appointments**
(A) *In general* — The members of the Council of a State shall be appointed by the Governor of the State from among the residents of that State.
(B) *Recommendations* — The Governor shall select members of the Council, at the discretion of the Governor, after soliciting recommendations from organizations representing a broad range of individuals with developmental disabilities and individuals interested in individuals with developmental disabilities, including the non-State agency members of the Council. The Council may, at the initiative of the Council, or on the request of the Governor, coordinate Council and public input to the Governor regarding all recommendations.
(C) *Representation* — The membership of the Council shall be geographically representative of the State and reflect the diversity of the State with respect to race and ethnicity.
(2) **Membership rotation** — The Governor shall make appropriate provisions to rotate the membership of the Council. Such provisions shall allow members
Source: Supplied U.S. Code snapshot — release unconfirmed · 42 U.S.C. § 15025
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Federal law — U.S. Code and appendices · legal_authorities
Page 8674
TITLE 42—THE PUBLIC HEALTH AND WELFARE
§ 15025
U.S.C. 12101 et seq.), section 794d of title 29,
and the Fair Housing Act (42 U.S.C. 3601 et
seq.).
(G) Individualized services
The plan shall provide assurances that any
direct services provided to individuals with
developmental disabilities and funded under
the plan will be provided in an individualized
manner,
consistent
with
the
unique
strengths, resources, priorities, concerns,
abilities, and capabilities of such individual.
(H) Human rights
The plan shall provide assurances that the
human rights of the individuals with devel-
opmental disabilities (especially individuals
without familial protection) who are receiv-
ing services under programs assisted under
this part will be protected consistent with
section 15009 of this title (relating to rights
of individuals with developmental disabil-
ities).
(I) Minority participation
The plan shall provide assurances that the
State has taken affirmative steps to assure
that participation in programs funded under
this part is geographically representative of
the State, and reflects the diversity of the
State with respect to race and ethnicity.
(J) Employee protections
The plan shall provide assurances that fair
and equitable arrangements (as determined
by the Secretary after consultation with the
Secretary of Labor) will be provided to pro-
tect the interests of employees affected by
actions taken under the plan to provide
community living activities, including ar-
rangements designed to preserve employee
rights and benefits and provide training and
retraining of such employees where nec-
essary, and arrangements under which max-
imum efforts will be made to guarantee the
employment of such employees.
(K) Staff assignments
The pl
Source: Supplied 2024 U.S. Code historical extraction · 42 U.S.C. § 15025
Stored review status: historical_2024_not_currentness_verified. The source passage cites 42 U.S.C. § 15025. This identifies an authority to review, not proof of applicability.
Federal law — U.S. Code and appendices · legal_authorities
The purpose of this part is to provide for allotments to support a protection and advocacy system (referred to in this part as a “system”) in each State to protect the legal and human rights of individuals with developmental disabilities in accordance with this part.
Source: Supplied U.S. Code snapshot — release unconfirmed · 42 U.S.C. § 15041
Stored review status: release_metadata_unconfirmed. The source passage cites 42 U.S.C. § 15041. This identifies an authority to review, not proof of applicability.
Federal law — U.S. Code and appendices · legal_authorities
Page 8681
TITLE 42—THE PUBLIC HEALTH AND WELFARE
§ 15042
court the record of the proceedings on which the
Secretary based the action, as provided in sec-
tion 2112 of title 28.
(c) Jurisdiction
Upon the filing of the petition, the court shall
have jurisdiction to affirm the action of the Sec-
retary or to set the action aside, in whole or in
part, temporarily or permanently. Until the fil-
ing of the record, the Secretary may modify or
set aside the order of the Secretary relating to
the action.
(d) Findings and remand
The findings of the Secretary about the facts,
if supported by substantial evidence, shall be
conclusive, but the court, for good cause shown,
may remand the case involved to the Secretary
for further proceedings to take further evidence.
On remand, the Secretary may make new or
modified findings of fact and may modify the
previous action of the Secretary, and shall file
with the court the record of the further pro-
ceedings. Such new or modified findings of fact
shall likewise be conclusive if supported by sub-
stantial evidence.
(e) Finality
The judgment of the court affirming or setting
aside, in whole or in part, any action of the Sec-
retary shall be final, subject to review by the
Supreme Court of the United States upon certio-
rari or certification as provided in section 1254
of title 28.
(f) Effect
The commencement of proceedings under this
section shall not, unless so specifically ordered
by a court, operate as a stay of the Secretary’s
action.
(Pub. L. 106–402, title I, § 128, Oct. 30, 2000, 114
Stat. 1711.)
§ 15029. Authorization of appropriations
(a) Funding for State allotments
Except as described in subsection (b), there are
authorized to be appropriated for allotments
under section 15022 of this title $76,
Source: Supplied 2024 U.S. Code historical extraction · 42 U.S.C. § 15041
Stored review status: historical_2024_not_currentness_verified. The source passage cites 42 U.S.C. § 15041. This identifies an authority to review, not proof of applicability.