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42 U.S.C. § 284s — Tick-borne diseases

Federal law — U.S. Code and appendices · legal_authorities

42 U.S.C. § 284s — Tick-borne diseases

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Stable record: federal_law:legal_authorities:record_usc_9e170888e4e5e1243fc414b9
Source file: Laws/federal/codes/united-states-code/title-42/section-284s-tick-borne-diseases--2d5f7b8b33.md
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Source location: Title 42, Chapter 6A, § 284s; chapter-6a-public-health-service.md

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**(a) In general** The Secretary of Health and Human Services (referred to in this section as “the Secretary”) shall continue to conduct or support epidemiological, basic, translational, and clinical research related to vector-borne diseases, including tick-borne diseases. **(b) Reports** The Secretary shall ensure that each triennial report under [section 283 of this title](https://uscode.house.gov/view.xhtml?req=granuleid:USC-prelim-title42-section283&num=0&edition=prelim) (as amended by section 2032) includes information on actions undertaken by the National Institutes of Health to carry out subsection (a) with respect to tick-borne diseases. **(c) Tick-Borne Diseases Working Group** (1) **Establishment** — The Secretary shall establish a working group, to be known as the Tick-Borne Disease Working Group (referred to in this section as the “Working Group”), comprised of representatives of appropriate Federal agencies and other non-Federal entities, to provide expertise and to review all efforts within the Department of Health and Human Services related to all tick-borne diseases, to help ensure interagency coordination and minimize overlap, and to examine research priorities. (2) **Responsibilities** — The working group shall— (A) not later than 2 years after December 13, 2016, develop or update a summary of— (i) ongoing tick-borne disease research, including research related to causes, prevention, treatment, surveillance, diagnosis, diagnostics, duration of illness, and intervention for individuals with tick-borne diseases; (ii) advances made pursuant to such research; (iii) Federal activities related to tick-borne diseases, including— (I) epidemiological activities related to tick-borne diseases; and (II) basic, clinical, and translational tick-borne disease research related to the pathogenesis, prevention, diagnosis, and treatment of tick-borne diseases; (iv) gaps in tick-borne disease research described in clause (iii)(II); (v) the Working Group’s meetings required under paragraph (4); and (vi) the comments received by the Working Group; (B) make recommendations to the Secretary regarding any appropriate changes or improvements to such activities and research; and (C) solicit input from States, localities, and nongovernmental entities, including organizations representing patients, health care providers, researchers, and industry regarding scientific advances, research questions, surveillance activities, and emerging strains in species of pathogenic organisms. (3) **Membership** — The members of the working group shall represent a diversity of scientific disciplines and views and shall be composed of the following members: (A) *Federal members* — Seven Federal members, consisting of one or more representatives of each of the following: (i) The Office of the Assistant Secretary for Health. (ii) The Food and Drug Administration. (iii) The Centers for Disease Control and Prevention. (iv) The National Institutes of Health. (v) Such other agencies and offices of the Department of Health and Human Services as the Secretary determines appropriate. (B) *Non–Federal public members* — Seven non–Federal public members, consisting of representatives of the following categories: (i) Physicians and other medical providers with experience in diagnosing and treating tick-borne diseases. (ii) Scientists or researchers with expertise. (iii) Patients and their family members. (iv) Nonprofit organizations that advocate for patients with respect to tick-borne diseases. (v) Other individuals whose expertise is determined by the Secretary to be beneficial to the functioning of the Working Group. (4) **Meetings** — The Working Group shall meet not less than twice each year. (5) **Reporting** — Not later than 2 years after December 13, 2016, and every 2 years thereafter until termination of the Working Group pursuant to paragraph (7), the Working Group shall— (A) submit a report on its activities under paragraph (2)(A) and any recommendations under paragraph (2)(B) to the Secretary, the Committee on Energy and Commerce of the House of Representatives, and the Committee on Health, Education, Labor, and Pensions of the Senate; and (B) make such report publicly available on the Internet website of the Department of Health and Human Services. (6) **Applicability of FACA** — The Working Group shall be treated as an advisory committee subject to the Federal Advisory Committee Act (5 U.S.C. App.).11 See References in Text note below. (7) **Sunset** — The Working Group under this section shall terminate 6 years after December 13, 2016.

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Federal law — U.S. Code and appendices · legal_authorities

42 U.S.C. § 283 — Triennial reports of Director of NIH

**(a) In general** The Director of NIH shall submit to the Congress on a triennial basis a report in accordance with this section. The first report shall be submitted not later than 1 year after January 15, 2007. Each such report shall include the following information: (1) An assessment of the state of biomedical and behavioral research. (2) A description of the activities conducted or supported by the agencies of the National Institutes of Health and policies respecting the programs of such agencies. (3) A description of intra-National Institutes of Health activities, including— (A) identification of the percentage of funds made available by each national research institute and national center with respect to each applicable fiscal year for conducting or supporting research that involves collaboration between the institute or center and 1 or more other national research institutes or national centers; and (B) recommendations for promoting coordination of information among the centers of excellence. (4) A catalog of all the research activities of the agencies, prepared in accordance with the following: (A) The catalog shall, for each such activity— (i) identify the agency or agencies involved; (ii) state whether the activity was carried out directly by the agencies or was supported by the agencies and describe to what extent the agency was involved; and (iii) identify whether the activity was carried out through a center of excellence. (B) In the case of clinical research, the catalog shall, as appropriate, identify study populations by demographic variables, including biological and social variables and relevant age categories (such as pediatric subgroups), and determinants of health, that contribute to research on minority health and he

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Federal law — U.S. Code and appendices · legal_authorities

5 U.S.C. § 101 — Executive departments

The Executive departments are:

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Federal law — U.S. Code and appendices · legal_authorities

42 U.S.C. § 247b–23 — National strategy and regional centers of excellence in vector-borne diseases

**(a) In general** The Secretary shall— (1) (A) ensure the development and implementation of a national strategy to address vector-borne diseases, including tick-borne diseases, that— (i) identifies and assesses gaps and any unnecessary duplication in federally-funded programs; and (ii) identifies strategic goals to address such diseases and appropriate benchmarks to measure progress toward achieving such goals; and (B) update such strategy, as appropriate; and (2) coordinate programs and activities, including related to data collection, research, and the development of diagnostics, treatments, vaccines, and other related activities, to address vector-borne diseases, including tick-borne diseases, across the Department of Health and Human Services and with other Federal agencies or departments, as appropriate. **(b) Consultation** In carrying out subsection (a)(1), the Secretary shall consult with the Tick-Borne Disease Working Group established under [section 284s of this title](https://uscode.house.gov/view.xhtml?req=granuleid:USC-prelim-title42-section284s&num=0&edition=prelim) and other individuals, as appropriate, such as— (1) epidemiologists with experience in vector-borne diseases; (2) representatives of patient advocacy and research organizations that focus on vector-borne diseases, including such organizations that have demonstrated experience in related research, public health, data collection, or patient access to care; (3) health information technology experts or other information management specialists; (4) clinicians, entomologists, vector management professionals, public health professionals, and others with expertise in vector-borne diseases; and (5) researchers, including researchers with experience conducting translational resea

Source: Supplied U.S. Code snapshot — release unconfirmed · 42 U.S.C. § 247b–23

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Federal law — U.S. Code and appendices · legal_authorities

42 U.S.C. § 284s — Tick-borne diseases

Page 694 TITLE 42—THE PUBLIC HEALTH AND WELFARE § 284r 1 See References in Text note below. Editorial Notes CODIFICATION Section was enacted as part of the Comprehensive Addiction and Recovery Act of 2016, and not as part of the Public Health Service Act which comprises this chapter. § 284r. Basic research (1) Developing policies Not later than 2 years after December 13, 2016, the Director of the National Institutes of Health (referred to in this section as the ‘‘Director of the National Institutes of Health’’), taking into consideration the recommendations developed under section 2039,1 shall develop policies for projects of basic research funded by National In- stitutes of Health to assess— (A) relevant biological variables including sex, as appropriate; and (B) how differences between male and female cells, tissues, or animals may be examined and analyzed. (2) Revising policies The Director of the National Institutes of Health may update or revise the policies devel- oped under paragraph (1) as appropriate. (3) Consultation and outreach In developing, updating, or revising the poli- cies under this section, the Director of the Na- tional Institutes of Health shall— (A) consult with— (i) the Office of Research on Women’s Health; (ii) the Office of Laboratory Animal Wel- fare; and (iii) appropriate members of the scientific and academic communities; and (B) conduct outreach to solicit feedback from members of the scientific and academic communities on the influence of sex as a vari- able in basic research, including feedback on when it is appropriate for projects of basic re- search involving cells, tissues, or animals to include both male and female cells, tissues, or animals. (4) Additional requirements The Director of the National

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